Connecting with the SCI Community
Are you looking to engage people with SCI lived experience but don’t know where to start?
NASCIC now offers Engagement Services, which includes:
- Designing a plan for engagement;
- Education of various options for community engagement;
Execution of an engagement program.
What is Community Engagement?
Intentional, meaningful interactions with people who have lived experience that provide opportunities for mutual learning and effective collaborations.
Source: FDA Guidance
Did You Know?
How We Can Help
Understanding the Patient Journey
Gain a perspective of what a person with lived experience will encounter whether it is a clinical trial, interface design or intervention delivery. These can have implications on retention, design amendments, as well as outcome measures.
New to SCI? It is not as straight forward as you think. Designing a program to help your team learn not only the basics of spinal cord injury but also the lens of living with the condition and understanding the community.
Are you asking the right questions at the right time in the right language? Your communications with the community can be critical to your success.
NASCIC is a collaborative consortium. Our referral network can help you to get connected to the right people in the SCI Community.
Ready to Get Started?
“Our partnership with the North American Spinal Cord Injury Consortium is instrumental to ANEUVO as we seek to better understand the experience of those living with a spinal cord injury. Through our collaborative work with NASCIC, we are more prepared and better informed to develop meaningful technology, research, and innovation for the SCI community.”
Katie Velez – VP, Global Marketing and Strategy
“The collaboration with NASCIC in preparation of our first clinical study protocol was exemplary to obtain direct input and feedback from patients with SCI-lived experience. The NASCIC team was very responsive and extraordinary collaborative – it was a pleasure to work with NASCIC.”
Cornelia Haag-Molkenteller, MD, PhD – Chief Medical Officer, EG 427