Project Review Committee Members

Several colleagues and I recently decided to investigate how people living with SCI access and assess information about novel therapies and clinical trials. We approached NASCIC, and asked them to help us identify consumer advisors who would be willing to involve themselves in the work.

NASCIC and those involved who have SCI lived experience helped us develop a survey that was approachable, consumer-friendly, and asked "the right" questions. They then helped us to distribute the survey via platforms to which we, as researchers, would ordinarily not have access.

Finally, one of the consumer advisors, in particular, reviewed our findings with us and helped us to interpret and contextualize them and to understand their importance. This was critical to our ability to write impactful discussion sections.

Overall, working with NASCIC was a huge "win." Our project was far better for the collaboration.